To achieve our purposes we intend to pursue the:
- Development of an information service to direct patients to reference medical centers.
- Diffusion of genetic disease information trough professional courses, conferences, conventions and publications.
- Creation of an interactive computer network for all clinical professional working in the province of Varese, in order to help scientific communication between medical experts and families of patients.
- Development of an La gemma rara’s internet site for promoting and advertising its activities.
- To acquire funds, by means of various promotion and activities, for the purpose of supporting the development of genetic disease diagnosis research in Varese.
- Creation, for medical staff working in public health care facilities in Varese, of scholarships to improve diagnostic research.
- Increase the dedicated consulting clinical structures, already operating in Varese, in order to satisfy patients’ needs and comply with international standards.
